chronic illness

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Anniversary

Fri, 01/07/2011 - 21:00 -- Bee

Today we decided to go to Malibu and live out our Rockford Files fantasies. Except, you know, the car.

In theory this was our anniversary, but of what exactly? It has been fifteen years since we rocked up at the 24 Hour Church of Elvis, got hit with a magic wand, signed some papers, accidentally ended up on the evening news. Though in my view that was simply the day we scammed a discriminatory system, the day I became officially eligible for health insurance.

The only vows we took, the only promise I could have made given the distrait circumstances? To remain friends.

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Forty

Thu, 01/06/2011 - 21:00 -- Bee

I wanted to go to a medieval jousting banquet somewhere near Anaheim but the children objected on aesthetic grounds, and Byron claimed to be "allergic."

See? My birthday is always so difficult!

Given the constraints of the guests, my nostalgia for childhood misadventures in California, the fact that I already miss England, and Byron's academic affiliation, the destination was obvious. We collected up my mother and the children from their Disney sojourn and ventured forth to spend the day on the Queen Mary.

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Wound

Fri, 12/17/2010 - 04:06 -- Bee

Last summer I dragged my charming companion to a specialist to have his suspicious moles examined. The doctor was dismissive until I asserted my highly specialised personal knowledge of skin cancer. Several hundred cancerous lesions does tend to lend a certain credibility to the proceedings.

He asked me "I presume you have regular check-ups?"

I shrugged and replied "Conceptually."

"What does that mean?"

"It means I don't like to be cut."

The doctor did not approve of this wayward answer.

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Devotion

Thu, 11/04/2010 - 21:00 -- Bee

Bonfire Night: the first time since moving to the UK that I do not need to move & guard my boat on the holiday!

I would say I miss her, but she sends postcards.

Instead of festivities and fireworks I found myself consulting the internet for guidance on subjects such as best or favourite emergency room then whisking my charming companion away for a night of frolics in the A&E.

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Liberating

Thu, 10/07/2010 - 21:00 -- Bee

I am thankful every day that I chose England over Germany, but events this week illustrate the reasons in a specific way.

Private health insurance companies, with few exceptions, are able to refuse cover of pre-existing conditions. If, like me, you have a dominant genetic disorder, a secondary cancer diagnosis, and a free-floating auto-immune disorder variously acknowledged or disputed by specialists, it is rather hard to define anything as a "new" symptom.

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Honour

Sat, 09/18/2010 - 21:00 -- Bee

Somewhere in the muddle of moving my daughter received a package from her paternal grandparents. The contents included copies of the videos they shot when we all lived in the same town.

I was pleased to sit down with my grown-up child and watch the scenes of her evolving life, from a tiny little mewling scrap of a human to the robust and fleet-footed wonder she became. She was an exceptional and entertaining child; we had wild fun all the time, adored each other completely. I am hugely thankful someone recorded those moments.

McCain Is Trying To Kill Me (perhaps literally) by Maria Rowan

When I was 19, I was in a car wreck. As a result I had a spinal fusion that was successful for two reasons. First of all, I can walk and second, the fusion is in excellent shape twenty years later due to an excellent surgeon and prudent care on my part.
 
However; this puts me in a category known as "pre-existing condition" to insurance providers. Once you have one, you must stay insured at all times or you will never be insured again.
 

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