Mercury, allergic to everything lyme disease aaack.

sam
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Last seen: 3 days 9 hours ago
Joined: 04/04/2005

We went to see Ethan's lyme pediatrician and got his test results. It looks like my boy is allergic to gluten and casein, and most likely corn and soy as well. The doc has prescribed a gluten free, casein free, sugar free, preservative free, dye free, corn free, soy free...holy crap. diet. "What am I supposed to feed him?" I asked. His body is mercury poisoned, most likely from vaccines.

Jusst after the doc appointment I was laid off...again. My boss called, he expected me to have questions, something to say. His first question was, "Having fun?" Yeah, disability is a picnic. No part time work for me. Ah well. In the grand scheme of things, I just didn't really give a crap.

We start the GFCF diet tommorrow. I spent 2 hours in the grocery store staring at everything, reading ingredients and trying to pick out a week's worth of food that Ethan can eat. I will go into school tommorrow, doctor's note in hand to explain that my sweet boy is allergic to practically everything and that we have to try this diet for a month, no cheating whatsoever.

We also start an anti-yeast regimin and an alternative supplement to chelate the mercury out of his body. I know in my heart that this doc is right, but this all sounds completely nuts. I feel at odds with 98% of the world.

After 2 months of yeast and diet treatment, we will finally start antibiotic treatment to kiill the lyme in Ethan's tiny body. I may get my boy back out of all of this, but god does it feel hard.

On the plus side, my treatment is kikcing in, my mind is slowly but surely coming back online. I finally tested positive for lyme disease, which means that insurance is more likely to pay for my ridiculously expensive treatment. My periods came back after a 2 year hiatus. I can think and sleep 8-9 hours instead of 12-18. I can think somewhat straight. I know who people are and I can remember how to get most places. I'm not in constant debilitating pain. I no longer twitch like I have Parkinson's. I'm at a point where like this, I could work at least part time.

So now all I need is a very flexible job that is 20-30 hours per week, pays 17-20 bucks an hour and allows me a floating schedule to fit in my intramuscular shots 3X a week at the doctor's, along with Ethan's crazy medical treatments.

So I'm putting it out there. The universe has always provided and I know that soon it will provide again.

I will never be the same. I hope that this is a good thing, that I will develop reserves of patience, strength, wisdom, empathy that would have been unfathomable even a year ago.

Aurinel
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Joined: 12/23/2007
You are so incredible strong!

You are so incredible strong! That boss sucks.
Vibing you for: a part-time job with an understanding boss, with an amazing health insurance. For a working diet for Ethan. For Joy coming your way. For sunshine on your shoulders and in your heart.
I am sending a whole bunch of hugs and love to you both!

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...the lover, the dreamer, and me (Jim Henson)

sunflower
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Joined: 02/06/2005
oh, so much at once!

So sorry about the crap sundae your life has been lately. I hope the diagnoses for both of you gets you both on the road to feeling better.

I wanted to pass along this website: Living Without

It is a great resource for restricted diets.

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Sunflower the unflower

Mom's Tinfoil Hat
Foodie loves Picky

lost account
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Joined: 06/09/2011
I am inspired by your strength in the face of all this

That's a lot to deal with, I'm really glad your body is doing better, and I hope you can find the job you need!
Vibes.

try glutenfreemall.com. I've found some good pastas and crackers there. Glutenfreegirl.com is a good resource for recipies and so is bobsredmill.com

We actually found that totally avoiding everything we're allergic and sensitive to has been a great way to reduce the number and severity of colds and flus, have a better mental outlook, get rid of other ongoing infections and problems. We like our life a lot more, now that we are eating right regardless of what 98% of the population is doing.

turtle's picture
turtle
gonna plant a tree, filled with hope for apples next year!
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Joined: 02/06/2008
another GF website

that I like- http://www.elanaspantry.com/

She does lots of baking recipes, has a baking-with-almond flour cookbook coming out, etc.

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Find ecstasy in life; the mere sense of living is joy enough. -- Emily Dickinson

You want to do what you think is right and what matters to you, and if other people don't like it, as my father would have said, they can go fuck themselves. -- Amy Bloom

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