A Narrow Miss

summerlop
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Last seen: 2 years 25 weeks ago
Joined: 02/23/2009

Yesterday I was informed that my COBRA coverage had been terminated because for some reason the administrators had not received my payment. This news quickly devolved into a hysterical breakdown and much begging and pleading to no avail.

For those just joining my regularly scheduled drama, no health insurance for me equals:
- No psych meds
- No therapy
- No prenatal care
- No emergency or hospital coverage
- Probable hospitalization at a county facility

And, according to frantic Internet research, with my litany of pre-existing conditions, not even the cheapest of the catastrophic-only coverage folks will take a nickel from me to buy a cup of coffee let alone give me an insurance policy to cover my basic needs.

So there was much panic, in particular because today I had my appointment scheduled for my preconception visit at UCLA that I have been waiting for coming on two months now. I went anyway, leaving psychic alms along Sunset Boulevard that I would somehow make this all work.

It did. On my way home I called the COBRA administrators and negotiated to pay pronto, in cash, to prevent my benefits termination. Woo hoo!

As for the preconception visit, many interesting items were revealed. The first is that my doc does not believe given the severity of my bipolar illness that I should stop taking my psych meds during preconception or - get this - during pregnancy. She thinks that this definitely puts me in the high risk category and so she asked me to see a specialist to consult with me on the matter which is a welcome relief to the school of "no drugs except Tylenol ever" whilst in the family way.

Also, she recommended genetic testing - not due to my previous miscarriages - but due to the chance that since bipolar illness is rampant in my family that if my partner carries a gene for mental illness we have a definite probability of having a child with a mood disorder, or worse, a child with schizophrenia. So we need to be prepared for that possibility. Wow.

I've always thought that being a mentally ill parent would make me uniquely suited to having a child with a mood disorder. Schizophrenia, however, did not enter my thinking, of which, I have a lot to do apparently.

So I ask my hip mamas this:

- Would you conceive a child knowing in advance they might suffer from a totally debilitating disease, mental or otherwise?

- Have you or have you known anyone to use State health care programs in lieu of insurance to treat conditions such as mood disorders or pregnancy?

__________________

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

earthgarden
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Joined: 10/28/2006
yes

I would conceive such a child, because I am such a child. Mental illness runs rampant in my family on both my mother's side and father's side. I have siblings, cousins, and other family members with schizophrenia, bi-polar disorder, depression and various personality disorders. I myself have suffered severe depression before. But I also have siblings and other family members who have no mental illness, and so far my children have shown no signs of mental illness. So it is not a given your baby will inherit any such sickness nor be negatively affected much environmentally, because you are taking medication and handling your illness.

I have never seen any of my family members with mental illness successfully raise a child, though. My sister with bi-polar disorder has no children, and my sisters with schizophrenia, paranoid personality disorder, and extreme social anxiety have had their children raised mostly by family; either my parents or the fathers' family. My brother with schizophrenia died, no children.

I do wonder how you might handle it if your child did become mentally ill. My siblings with mental illness seemed to take it very personally when younger siblings became affected, almost like they felt it was their fault. One breakdown seemed to trigger another and so forth.

creative life | children
"No one can make you feel inferior without your consent." ~Eleanor Roosevelt

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summerlop
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Joined: 02/23/2009
That Is An Amazing Story

I am particularly moved by the fact that you mentioned your family members with severe mental illness have not successfully raised their own children without family assistance.

Another thought-provoker is the cycle of parent-child episodes that trigger one another. My mother and I had a fair amount of that as my illness began to present itself.

A huge hope I have - we'll see how reality treats this - is that I am armed with more information about mental illness and treatment than generations before.

However, as prepared as I might be, I can easily envision the scenario you suggested in which I would take my child's disease personally since I am the source. That would be hard to get over. Guilty emotions run deep.

But all considered, the most amazing thing is that knowing what you know, you would still go ahead and conceive. Me, too.

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

earthgarden
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Joined: 10/28/2006
yes

because although my childhood was often very chaotic, and frightening, and scarring...my life is beautiful and has meaning. Going through what I did, growing up with mentally ill people and being exposed to things no child ever should, knowing what I know, ultimately shaped me to be a person very aware of the importance of nurturing mental and emotional health. I don't think that without my background I would have taken my own depression seriously and gotten help (I had severe PPD after birth of one of my babies) nor would I be in therapy now. I don't ever want to subject my children to an 'episode'. I think your child will be fine, because you seem very aware of and responsible about your mental illness.

creative life | children
"No one can make you feel inferior without your consent." ~Eleanor Roosevelt

summerlop
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Joined: 02/23/2009
Clearly It Did...

...shape you into an aware person. Thank you again for sharing that awareness with me.

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

earthgarden
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Joined: 10/28/2006
you're welcome

I'd also like to say, that even if genetic testing comes back that your partner is also carrier of some mental illness genes, it's not like if your child was predisposed to it or even had a mental illness it would manifest itself immediately...my brother did 'go crazy' at a very young age, but my sisters did not show any signs until in late teens and early adulthood. So you'd have years and years to prepare, and they'd have your example of how to manage such an illness also. Not to mention how research on mental illness will continue to advance in that time. like take diabetes, for example. when my grandmother 1st was diagnosed with it in the early 40s, there was little medical understanding of how being overweight can trigger it. Now this is something we know, which is very helpful info for folks like me with a predisposition to diabetes; managing my weight can stop me from having this disease.

So like that, maybe in a decade or two we will know more what things can trigger mental illness in someone predisposed to it.

edited to add: may I ask, what are your plans for managing your illness during pregnancy? from my (admittedly limited) understanding, the drugs used to treat your illness are harmful to fetuses.

creative life | children
"No one can make you feel inferior without your consent." ~Eleanor Roosevelt

summerlop
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Joined: 02/23/2009
A Long & Complicated Journey

To answer your question, if I listened to my psychiatrist I should take zero meds during preconception and pregnancy. Shrinks are very much into covering their a** when it comes to this subject.

Therefore I am listening to my high-risk OB specialist at UCLA, who has me on the least damaging meds possible (those that happen to be the same that epileptic women take and have been more thoroughly studied.) All my OB docs believe that I should stay on my meds as my condition dictates in any phase of pregnancy. (Of course, I am also taking huge amounts of various supplements as well to reduce harmful effects.)

My high-risk specialist's theory is based on prevention of the undue stress a baby would experience in the womb by the severe symptoms my illness would manifest when I am sans meds. Not to mention the increased chance of harming myself when I'm not properly medicated, or requiring hospitalization and large quantities of meds to stabilize me in an emergent psychiatric situation.

I intend to be monitored until I'm pregnant and then attempt to go off my meds and see if the happy hormones kick in and see me through to term, at which point I would probably start taking meds again prior to delivery to prevent a hormonal fall-off resulting in a depressive state.

At the end of the day, I believe that the same rule applies to mental illness managed by potentially damaging meds as any other illness managed by the same - the arbiter will be whether the benefit outweighs the risk. I think this is a choice for mamas in my same boat on a case-by-case basis and not an easy path to negotiate.

I certainly would not judge another mama for making a different choice just as I would appreciate the same courtesy. (I realize this will be highly unlikely as everyone seems to have a heated opinion on the topic.) But it's my body, my baby, and ultimately two lives I am responsible for keeping healthy and safe.

In another vein, just wanted to share that onset of my depressive symptoms occurred very, very young... as early as five years old I knew there was something not altogether right with my head. I was the kid whose head didn't belong.

But it was when I was 16 that I began presenting with more frequent ups and downs and when I was 19 I finally experienced my first sustained depressive episode and then 21 when I had a full-blown manic period lasting more than six months. (Which is the diagnostic criteria for bipolar disorder.)

Luckily, I was 22 when I was properly diagnosed and have been on meds and in therapy ever since... although that road has hardly been the easiest (I've self-hospitalized three times) and makes my professional and familial relationships extremely difficult.

But here's the great news - I am alive. One in four of us don't make it. People tend to forget that when they reduce my illness to "moodiness" or suggest that I just "tough it out."

By the way, onset of mental illness in my male relatives all occurred during mid-life, oddly enough. I've always wondered if people just didn't take clear notice of their atypical behaviors because sometimes men get away with a lot more sh*t. Who knows?

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

earthgarden
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Joined: 10/28/2006
thanks

I appreciate you sharing your plans, I really do. best wishes!

creative life | children
"No one can make you feel inferior without your consent." ~Eleanor Roosevelt

Madame Filth's picture
Madame Filth
lies, lies, all lies!
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Joined: 08/14/2006
i've known people who've done it

but not in california, so it's moot. i can't tell you what would happen in california when your cobra runs out.
.
as to your other question, how forthright do you want us to be? is your decision already made? i started typing my answer and got uncomfortable, not knowing how you'd take it. but i'll tell you if you want to know.
.
come out

summerlop
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Joined: 02/23/2009
Yes, My Decision Is Already Made

But thank you for asking how forthright I want you to be. I can tell from your question that I might not actually want to know your answer. Thank you for your mindfulness.

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

Madame Filth's picture
Madame Filth
lies, lies, all lies!
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Joined: 08/14/2006
i'm glad i asked then

good luck in your journey
come out

guava
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Joined: 02/24/2005
I had a very similar situation with my COBRA

it ran out a few years ago...right after I got back a positive pregnancy test with my oldest son. I had a sobbing meltdown on the phone with Blue Ass after the service representative told me to go to the state services because pregnancy was a 'pre-existing condition'. I had never received any sort of notification that my COBRA was going to expire, so it was really jacked up.

I would do research to see if there are any health insurance groups you can join - alumnae groups from a school...hobbyist groups that you could qualify for? We ended up going on K*iser through DH's work, and they back-dated the paperwork so there wasn't a lapse in coverage.

I don't have any first-hand experience with using the state services for treatments, but a friend of mine went to clinics and got prescriptions for anxiety and depression. It sounded like it involved a fair amount of hassle. She had a baby on WIC/state assistance and said that her birth went pretty well and she had access to a water birthing pool (in California).

As for your other question...I would probably conceive the child anyway. I just got diagnosed with a chronic auto-immune disease that's genetically transmitted, and rampant in my family. DH's aunt and grandfather had it too, so both of my kids are at risk. While this has been a pretty depressing realization, there is still the chance that they won't develop the disease.

"Too weird to live. Too rare to die." - Hunter S. Thompson

summerlop
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Joined: 02/23/2009
There's Always Something

Thank f*ck for your partner being Plan B with his insurance coverage. Now that's a happy ending!

After this COBRA scare my partner (who is without insurance as many folks in our line of work are) saw the writing on the wall and is determined to find an employer who offers benefits that would back me up.

When "The Scariest Scenario Imaginable" knocks on your door, you sort of have to listen.

Also, you are brave to share the story of your choice to conceive. It lends me strength.

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

noisytownfamily
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Joined: 03/29/2009
Question one: yes. and lot's

Question one: yes. and lot's of people do. whether it be higher risk of mental retardation, physical disability, or mental illness, plenty of people persue parenthood knowing full well that their child might be born with a disease.
besides, we are making the decision to bring wee ones into this crazy pants world. if we are willing to do that then we're all batshit crazy anyway. Smile

Question two: yes. i am in pa so it's not gonna be the same story as california. my prenatal care was pretty good although visits to the doctor were VERY time consuming. i think people on public assistance need to be very informed about their conditions and vocal about what they do and do not want. especially when it comes to prenatal care, delivery, and post-partum care. i didn't know that our local birthing center accepted medicaid until after i delivered my baby, so do lot's of research and you might be surprised about the services that really are available to you.

good luck!

noisytownfamily
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Joined: 03/29/2009
i'd also like to add that i

i'd also like to add that i decided to concieve knowing that i have suffered from depression and ptsd. on top of that i have a blood condition where my body actually good have attacked the fetus, treating it as a foreign object. essentially my body could have decided to terminate my pregnancy all on it's own.

summerlop
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Joined: 02/23/2009
Wow

Talk about stopping at nothing to become a mama! Pretty impressive moves out there in PA.

Especially grooving on your point about all of us being batsh*t crazy to want to introduce new creatures to the mess we've made of this world.

After many miscarriages, insurance snafus, my own second-guessing and lots of unsolicited advice from people who just don't count or know better - the answer is yes, I will have a baby.

Thank you for reminding me that it can be done although it ain't easy.

Summer (35) ~ Hoping to be a Mama
Thomas (34) ~ Patient Papa in Training
4 Fur Babies ~ 3 Angel Babies

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