chronic illness mamas out there?
i have diabetes. it started as gestational and never went away, and now is a crazy, out of whack issue that i am having trouble controlling. i take two kinds of insulin, an extra shot of another hormone called amylin and it is still not where i want it to be. doctors are starting to suggest more extreme measures, including lap band surgery, even though i am not 100 pounds over weight, with my BMI and the insulin resistance, it is something i qualify for. just had lab results come back with my creatinine elevated, which is either temporary from my kidneys having to work too hard due to recent high blood sugars while medications are adjusted, or stage one kidney failure. nice. the reason they are adjusting the meds is that insulin causes weight gain, and i have gained 30 motherfucking pounds in the last two years. for no reason, really. i am honestly not a big exercise hound, and i love food, but this weight gain is not the result of any lifestyle changes other than a whopping 150 units of lantus every day. so we had to change that and now...gah.
anyway, i didn't really want to bitch about it on here, but i know others struggle with some chronic illnesses and i just started a live journal to pour my shit into, so that i can try and work through this, and i wanted to invite any other mamas who can relate to maybe join in...
http://mala-azucar.livejournal.com/
anyway, this is part of why i don't post anymore, here, in general i have clammed up and kind of retreated, this is all very overwhelming to me and at the same time as i HATE talking about it, i guess i need to, and i need some commiseration, if there is anybody out there who can, i would appreciate it.
“You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
Friedrich Nietzsche
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Hi, PM. Nice to hear from you. I didn't realize you were dealing with all this. I have chronic issues of a different kind, but I understand how it affects every damn aspect of your life. I'll go check out your journal- healing thoughts to you.
oh this freaking blows. not cool. And then the apendicitis drama? Poor grrl! i am down to one kidney, I know its scary, but you're tough and will get through this and this too shall pass!
how did you end up with one kidney?? and yeah, they aren't sure if the appendicitis shit was connected. they don't "think" so. whatever. so frustrating. and it is scary.
Did you have a brain tumor for breakfast? --heather c.
I didn't know either - I am so sorry.
As a matter of fact I am dealing with some health issues myself -- in the testing phase right now. I'll PM you when I have more details but just wanted to let you know I'm thinking about you.
"Step off my big ass."
- Anthromom
after all the crap you had to deal with when t. was sick? i think about you all the time. check your PMs. love you.
Did you have a brain tumor for breakfast? --heather c.
Oh mama!!! I am so sorry you diabetes is getting worse and worse. SO NOT FAIR. Thinking of you.
i shouldn't be avoiding coming around, you know? and it isn't fair! wah wah! that is so true and nice to hear SOMEBODY else say it for once! haha. love you.
Did you have a brain tumor for breakfast? --heather c.
there you are! i miss you so damn much. and i'm so sorry to read that you're dealing with more health crap. that blows. please don't clam up. i'm not going through what you are, but i'm here for ya. oh, and my friend's daughter got the lap band last christmas and her type II was gone baby gone within a month. it was truly a life saver for her.
good things about the creepy frankenstomach surgery, i need to hear it! haha. love you, and see you in december! woot!
Did you have a brain tumor for breakfast? --heather c.
outpatient surgery. three miniscule points of entry. six stitches. zero complications. 50 lbs lost and counting. diabetes in remission. all covered by insurance. priceless.
be sure to PM me your dates when you know them. i want to be certain i'm around when you are! eep!
I'm glad you're reaching out.
xo
.
i am bad at it. really, what a hypocrite, huh?
Did you have a brain tumor for breakfast? --heather c.
I too have diabetes. And started with gestational and has worsened. I recently started insulin...scary for me. And my recent lab work sucked. I am having my metformin increased again. I started the insulin to get off of the metformin, but of course my doc does not remember that! They only see numbers and prescribe, even though I have complined of kidney pain from too many scripts. Anyways, I don't want to hijack your post. But I am close to where you are, I keep hoping they suggest lap band because I am so heavy. I doubt my insurance will pay for it though!
http://cooksewbitchy.blogspot.com/
the scary thing about insulin is the massive weight gain to me! i used it all through my pregnancy and then for another year so that i could nurse, i think the pills freak me out more than the insulin at this point. i canNOT tolerate metformin, did two trials of it, but DAMN the GI issues, i mean, BAD. like, remember that saturday night live skit for the "oops! i crapped my pants!"??? i'll say no more. you aren't hijacking! i am so grateful that you spoke up. and BTW, my endo says that the insurance will almost certainly pay for the lap band cause of my BMI combined with the diabetes. it like, cures it for a lot of people so i guess the surgery really turns out to be cheaper for them than your lifetime diabetic care and all the bad shit that even well controlled diabetes can do to your organs, etc. you should ask your doc about it.
wow, i sound really "sold" on the damn surgery, don't i?
anyway hijack away.
Did you have a brain tumor for breakfast? --heather c.
As the mom of a type-1 diabetic I'd say to do ANYTHING that you can to cure or lessen the diabetes. You are fortunate to have options available.
"I have no country. As a woman, I want no country. As a woman my country is the whole world." - Virginia Woolf
"If men could get pregnant, abortion would be a sacrament." - Rose F. Kennedy
"I have no country. As a woman, I want no country. As a woman my country is the whole world." - Virginia Woolf
"If men could get pregnant, abortion would be a sacrament." - Rose F. Kennedy
what you go through with DS and yes, i am fortunate to have options. this has all happened relatively fast and i think i am just spinning from the gravity of it all.
Did you have a brain tumor for breakfast? --heather c.
I'm sorry honey.... I have heard great things about the surgery though! If that will help even reduce your symptoms that's something to look into.
I have (minor) IBS, self regulated. And some bone thing that I won't go in to get diagnosed for because I suck and it's not that bad. Heh.
punkpapa just got diagnosed with IBS after a scary and vile colonoscopy to rule out the really bad stuff, and all that, and medical shit sucks. especially if you tend more towards the intuitive/natural side of things, like we do, to be told your pancreas has quit is pretty disturbing. well, for me it is.
they are setting up the referral to the bariatric clinic for me next week. please vibe that i can get my head around all of this. i will be shouting out to you to tell me some of those great things! xoxox
Did you have a brain tumor for breakfast? --heather c.
I will come back to this when I have time. I am dealing with being pg and having gd again and what I am going to do after baby to make sure I don't become diabetic if it is not too late.
"If Barbie is so popular, why do you have to buy her friends?"
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thanks for the support, mama, i needed that! the taking over of your life thing, i think that is what i am wallowing in right now. xoxo
Did you have a brain tumor for breakfast? --heather c.